Thursday, June 6, 2013

It's a Hell of a Disease, This Multiple Sclerosis! plus: I've now undergone 47 surgeries including the amputation of my right leg above the knee

 Megan Jones, Columnist

I have been in the fight of my life against lie-threatening infections. I've now undergone 47 surgeries including the chosen amputation of my right leg above the knee. In September I underwent surgery for infection in my nub.

The doctor sat up looking as calm as he could
before shaking his head saying, "Well this sure isn't good."
"The tests have solidified our worst fear,
Notice the spots in your brain here, here, and here."
He then started to explain about the normal human brain
before sighing and saying, "I'm sorry but yours just isn't the same."

"Now none of this is normal by any stretch of the word
and I'm sorry to tell you that this can not be cured.
There are some medications that we can certainly try
and please understand that you're not going to die.
You'll get the best medications that I am able to give
and a normal life you'll hopefully be able to live."

Well it's a hell of a disease, this Multiple Sclerosis
and you'll never believe all of the hardships it poses.
Why is it that there are so few MS conventions?
It needs more support. It needs more national attention.
Possible symptoms include tremors, bad balance and pain
With a little more of the spotlight a cure could be gained.

It used to be considered only an adult's disease
but truth is it does strike children so innocent and carefree.
It's an unpredictable disease and it's scars are unseen
Multiple Sclerosis can be pretty damn mean.
Sometimes it makes even the little things incredibly tough
We can slow the progression but that's just not enough.

More and more people are being diagnosed
and chances are they are some people you know.
There should be TV shows called When MS Attacks
so that more and more people might get all of the facts.
They'd realize just how hard life with MS can at times be
and that millions are suffering silently with this disease.

It isn't a death sentence, it is far from the end
and through the diagnosis of MS you'll make some incredible friends.
You'll experience anger, frustration and fright
but you'll get back on your feet and fight the good fight.
Through walks, fundraisers, awareness and cash
we WILL one day make MS a disease of the past.